Showing posts with label medicaid. Show all posts
Showing posts with label medicaid. Show all posts

Monday, September 15, 2008

Score one for Disability Rights

Even a stopped clock is right twice a day and finally Congress did something right. (Well the Senate anyway.)

On September 11th the Senate passed S. 3406, the ADA Amendments Act of 2008. This is a big fucking deal for people with disabilities. Now I'm gonna ask you to send a short email to you reps and ask them to vote for it (it had 77 cosponsors in the Senate (including my own, Patty Murray, who I love, and Hillary Clinton) so hopefully that's some indication that it will easily be passed in the House as well). What is so great about this? It changes the language, it removes some of the worse paragraphs, it gives people with disabilites (more) legal recourse if discriminated against, and it changes the definition of disability as well as putting in writing (thank god-this is something that means a lot to me personally as someone *on* disability who is mostly functional on medication) that the determination of whether or not one has a disability is made without taking into account things that aid in helping the person to lead a "normal" life. Observe:
'(E)(i) The determination of whether an impairment substantially limits a major life activity shall be made without regard to the ameliorative effects of mitigating measures such as--

'(I) medication, medical supplies, equipment, or appliances, low-vision devices (which do not include ordinary eyeglasses or contact lenses), prosthetics including limbs and devices, hearing aids and cochlear implants or other implantable hearing devices, mobility devices, or oxygen therapy equipment and supplies;

This is important because the courts ruled in the past that there have been rulings that have said that if such assistive devices improve your life then, viola! you are no longer disabled as in the 1999 case Sutton v. United Airlines. My life is 10x better on medication and I'm continually scared of being kicked off of disability as a result which means no Medicaid and no medication. Whee. What a catch-22. I become almost fully functional with medication and then I am kicked off because I am only fully functional to fall back into my less then desirable state of functioning just to go back on SSI-D and medication. Whee again. And I'm not the only one who lives with this fear.

Back to the legal recourse. Many different types of disabilities were not included and were being discriminated against and not recognised by the courts under the current laws. Non-physical disabilities, i.e. the ones that most people think of when they hear the term 'disability' were generally discriminated against, because, well, if you can't see it it doesn't exist, right? Wrong. And this Bill is changing the laws to make sure that people like me are covered. If the government pays me disability why then am I not included in the ADA? Hmmmm.
In a statement, Nancy Zirkin, executive vice president of the Leadership Conference on Civil Rights, praised the bill's introduction: "The ADA Amendments Act is the most significant civil rights bill of the 110th Congress. This act will correct narrow court interpretations that have restricted ADA coverage in the workplace, and taken away coverage for people with diabetes, epilepsy, serious heart conditions, mental disabilities, and even cancer."

I am writing first as a HURRAH that this was passed for the 43 million people in the US living with a disability, but also to ask that you do contact your reps (whether you actually vote or not-I don't care and they don't know) because this bill needs to pass the House. This amendment needs to happen. For me. For the 43 million others and all those undiagnosed. For the people who are usually left behind when talk of civil rights is brought up.

(Oh and while you're at it you should add something about HR 676 single payer healthcare-then no one would have to worry about going without medical care or medication.)

Also, currently there are Disability Rights Activists blocking all the doors at McCain's Campaign Headquarters (follow the happenings through Twitter) What are they asking for? Housing! Call McCain headquarters at 703-297-8900 to tell them to get the housing platform to McCain!

Wednesday, April 23, 2008

Creepy

SSI just sent me a form for WA Power of Attorney and the WA Health Care Directive.

I know it shouldn't creep me out, since it's a good thing to have and there are people I trust far more then my family (like my partner) and just because I have one does not me I'm going to fall into a permanent vegetative state or anything. It's just part of the loads of paperwork that they are sending to everyone on SSI Disability who all got automatically enrolled in the state Chronic Care Management Program a few months back.

They also sent me my "plan" which is really weird since it's so obviously written to my doctors or potential caretakers and not me.
To whit:
BEH HEALTH: Take out for regular walks.

Uhhhhhhhhhh, what? Did they even talk to me? I told them I was going to school, so they should know that I get out of the house regularly. I told them I took a dance class so I was getting exercise at least 2 times a week. But there's also this weird thing about a pulmonary rehab referral, so I'm confused.

Anyway, I guess I should open up all those other large 'time sensitive' envelopes that they've been sending me. But first I have to find some way to be in a room with two people (me hermit) so they can witness me sign my forms. Weird.

Saturday, April 05, 2008

ARGH!!!!!

Do you know how excruciating it is to figure out the multiplicity of a large system without knowing how to use excel? (I can get everything but the f*&&ing combin function to work.) I've spent the past 3 hours working on that 1. stupid. function. I could have been at a cookout with my math geek and his band. Who, incidentally, just told me that he thinks he knows how to do it so I could have saved myself all the spitting and swearing and had some fun as well. &*^^$$#$$&^*(*)I)_()_%^%#@@!!#%^&^&*()*()()(_)_)*(&%^$$#$@@!$@#!


And I didn't get the REU. I know I should have applied for more, and I wanted to, I was just overwhelmed by evil Moore method class that unknowingly all the deadlines passed me by. That's what happens when you're drowning in anxiety. I fucking love this disability, let me tell you.

Speaking of which, without including the price of my daily dosage of Lamictal (300 mg) for the bipolar, my Xanax, and my inhaler my running total for monthly meds is $645.92. Thank god for medicaid. (And I know that people moan and scream that they don't want socialised health care b/c they don't want to pay for that, but trust me when I say it's a hell of a lot cheaper then my going to the ER for a shot for an anxiety attack (which I only go in for after being unable to sleep or calm down for at least 2 days.) And that was at least once a month. Morons.

EDIT:
To supplement my bad lernin' I've been visiting this site and taking quizzes including US Capitals, presidents and countries of Asia, Africa, etc, etc. I also hold the record time for naming all the Jane Austen novels.

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